Apr 14, 2006
John's Lyme Battle

Up until the year 2000, I was in phenomenal health. For over 18 years I was a national class athlete - bike racing, swimming 3000 yards 4 days per week, training on my bike with 80 mile rides 5 days per week, scuba diving and having enough energy to hold a full-time, demanding job in a corporate environment. I had just turned 45 and in the last 2 years, feel like I am in my 80's. I have 5 of the infections of Lyme disease.

From 2003 to 2005, I sought medical help within mainstream care and no one could figure out why I was having trouble walking, why my muscles were wasting, why I was having breathing difficulties, sweats, heart palpitations and the loss of cognitive abilities. I found a doctor in March, 2005 who knew how to test for and treat Lyme and that was when I was diagnosed.

I actually suspected I had Lyme in 2004 but the test that the other doctors did was the ELISA. This came back negative but did not account for all the symptoms I had. I was written off by the medical community as having an anxiety disorder. Why is it that one doctor who has extensive knowledge of this tick-borne illness found all of my infections with one set of testing and the others were clueless? Had my health concerns been addressed seriously back in 2004, I might have been in full remission by now. But for me, the Lyme progressed into full 3rd stage neuro involvement.

Currently it is difficult to even take a walk around the block. It's hard to play with my daughter. I have days when I can't even get out of bed. On the days that I can, I dare not leave the house sometimes, in fear of having a cardiac episode. ER visits have become a common occurence, with abnormal EKG's. The list goes on and on...

I have been in treatment for 14 months now and might be just beginning to see some improvements. There is so much more ground to go before I can say that I have achieved some degree of normalcy. But I do know this...if it were not for the help that I did receive from my current Lyme doctor, I would surely have died months ago.

John Shea
Wisconsin


Posted at 02:12 pm by pattyknack

 

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Welcome to the Lyme Coalition of Northern Wisconsin blog site.

Millions of Americans suffer from Lyme disease, yet the general public as a whole knows little about it. It's not merely a disease that makes you "tired and achy" - it's an insidious disease that destroys lives and can be fatal.

By sharing our stories, we hope to educate others as to the horrors of this insidious disease that is currently spreading 5 times faster than the AIDS virus.

Thank you to those of you who have been gracious enough to share your stories...

To learn more about Lyme Disease, please visit my website at www.pattyknack.com






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